🧠 Every Rare Disease Deserves Awareness. Every Family Deserves Hope.
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🧠 Every Rare Disease Deserves Awareness. Every Family Deserves Hope.
10 views1 month ago
YouTubeNaturepath clinic
Adrenoleukodystrophy MRI Brain Case #shorts
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Adrenoleukodystrophy MRI Brain Case #shorts
270 views3 months ago
YouTubeDEEP RADIOLOGY
Advice for newly diagnosed ALD AMN patients #adrenoleukodystrophy #ald #adrenomyleneuropathy
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Advice for newly diagnosed ALD AMN patients #adrenoleukodystrophy #ald #adrenomyleneuropathy
515 views7 months ago
YouTubeChristie & Ken ALD - No Limits
International Adrenal Disease Awareness Day
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International Adrenal Disease Awareness Day
4 months ago
YouTubeAlex TLC
Primary Adrenal Insufficiency in Males, The One Blood Test You Cannot Miss
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Primary Adrenal Insufficiency in Males, The One Blood Test You Cannot Miss
1.1K views5 months ago
YouTubeALD Hope
Living with Adrenoleukodystrophy: Why I Chose Stem Cell Therapy #stemcell #shorts
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Living with Adrenoleukodystrophy: Why I Chose Stem Cell Therapy #stemcell #shorts
938 viewsMay 10, 2025
YouTubeSwiss Medica Clinic
If Your Child was Diagnosed with ADHD, Has ALD been properly Ruled Out?
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If Your Child was Diagnosed with ADHD, Has ALD been properly Ruled Out?
234 views5 months ago
YouTubeALD Hope
1:06
When a VUS was hidden how we confirmed Grandpa had adrenoleukodystrophy #adrenoleukodystrophy
965 views4 months ago
YouTubeChristie & Ken ALD - No Limits
1:00
X Out ALD Walk 💛❤️ #adrenoleukodystrophy #xoutald
154 views1 month ago
TikTokdirtybee_
1:58
Two Parents Were Told Their Son Would Die. So They Taught Themselves Science.
159 views3 months ago
YouTubeMelissa Bime
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From Managing Metabolism to Correcting the Cause: Gene Therapy in IEMs
11 views2 months ago
YouTubexunyi
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ALD Gene Carriers: When a Child’s Diagnosis Reveals a Family Story #ALD #RareDisease
1 views1 week ago
YouTubeThe Lone Warrior Against a Rare Disease
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Duniaku sedang tidak baik2 saja, begitu cepatnya kondisi EL drop dari yang tadinya luar biasa aktif menjadi drop dengan sangat cepat karena suatu penyakit yang bahkan tidak pernah kudengar sebelumnya pernah ada di dunia ini #sonshine #adrenoleukodystrophy #ALD #XALD #leukodystrophy #leukodystrophyawareness #raredisease #miracleshappen #fyp #indonesia
2.2M viewsFeb 25, 2025
TikTokclara_inge1
3:04
Getting out of the house is a great option on days when my daughter is highly sensory seeking. Driving with the windows down, walking around, these can all help change up the day. #momtok #disability #disabled #disabilitytiktok #disabilityawareness #momsontiktok #specialneeds #parentsoftiktok #grwm #ditl #dayout #momofdisabledchildren #adrenoleukodystrophy #refsumdisease
1.7M viewsJul 11, 2024
TikTokadaptivemama
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Kisah Perjuangan Iman dan Adrenaleukodystrophy
586.7K viewsDec 1, 2023
TikTokimanramadhanii
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Berguna banget untuk anak yang pakai selang NGT pake feeding buret dan tiang infus untuk gantungin buretnya, untuk tiang infusnya ada di keranjang kuning ya buat yg butuh #ceritamamael #adrenoleukodystrophy #raredisease #ALD #XALD #leukodystrophy #sonshine #fyp #indonesia
30.3K viewsMar 29, 2025
TikTokclara_inge1
0:15
X-linked Adrenoleukodystrophy (ALD) is one of a group of genetic disorders called the leukodystrophies that cause damage to the myelin sheath, an insulating membrane that surrounds nerve cells in the brain. It leads to a long-term coma (vegetative state) about 2 years after nervous system symptoms develop. The child can live in this condition for as long as 10 years until death occurs. #genetics #neurologicaldisorder #brain #edu #edutokmotivation #edutok #neurology #disease
111.1K viewsOct 5, 2022
TikTokneurologyminute
1:16
Navigating Night Drives with My Daughter's New Medicine
31.4K viewsJun 24, 2025
TikTokadaptivemama
0:41
It can be tough to have “traditional”family time as a family with a disabled child, but that just means we make it our own and figure out what works for us ! #familytime #movie #exhaustedmom #disabilityawareness #disability #specialneeds #adrenoleukodystrophy #familymovienight #parentingtips
45.6K viewsJul 4, 2024
TikTokadaptivemama
0:17
Ke RS lagi hari ini 😆 #ceritamamael #adrenoleukodystrophy #ALD #XALD #leukodystrophy #raredisease #miracleshappen #fyp #indonesia
10.6K viewsMar 12, 2025
TikTokclara_inge1
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